Community News

You, Me, and PD Podcast

Hear their journey. Learn their perspective. Find strength in their words. Written & narrated by SEAYOPD members, Jeremy & Doreen Likness.

Introducing the You, Me, and PD Podcast (strengthwithparkinsons.com)

Donate to Waves Against Parkinson’s

What does an accomplished open water distance swimmer do when his wife has young-onset Parkinson’s disease? He decides to swim the English Channel for Parkinson’s awareness, and he inspires others to do the same.

Diane is a SEAYOPD founding member. Her husband, Chad, is a U.S. Masters Swimming three-time open water national champion and All American, and head coach of the Bernardo’s All Stars U.S. Masters Swim Team. Chad and his assistant coach Katy have slots to swim the English Channel for Parkinson’s awareness in August 2021. Deposits have been paid and training is underway—they’ve been swimming in the Puget Sound since the pandemic closed swimming pools last March, and they rung in the new year with the Bernardo’s All Stars Fifth Annual Hell Week.

We’re out to raise $50,000 in two phases for Parkinson’s awareness and to cover expenses. Yep, $50k is a big number. We know we’ve got a supportive community and we plan to pull out all the stops.

Please join us in Making Waves Against Parkinson’s Disease.

Got ideas for sponsorships? Those are welcome, too.

The Parkinson’s Fitness Project

Nate Coomer and staff run an incredible physical therapy business that specializes in Parkinson’s. They have developed a renowned facility that can help everyone improve mobility, emotional stability and strength. Please do check it out! We’re very lucky to live in the Seattle area and have Nate, France and the rest of the team to help care for us.

Not close enough to Nate’s clinics? The Daily Dose web-based program can be done from anywhere at any time. Access a series of 20-30 minute videos you can follow along with. They range from sitting in a chair-level exercises to full-on sweat your butt off and feel great afterwards levels.

https://theparkinsonsfitnessproject.com/

https://www.dailydosepd.com/

Dr. Mischley CAM Study Information

The link has a great list of summaries of the information she has learned to date. There are three GREAT, simple, easy-to-read graphs that show you the +/- effects on PD symptoms of social, dietary and exercise habits. You can also participate in the research.

 https://livinghealthywithparkinsons.com/ 

The Parkinson’s Experience podcast by Sheryl Lowenhar

Hear an interview with marathon runner, American Ninja Warrior, husband, father, son and PWP Jimmy Choi. This chat will give you the motivation to get out and move. Additionally, the two-part series on deep brain stimulation (DBS) gave one of us the knowledge needed to not be scared of something that even four years post-diagnosis was still scary.

The Parkinson’s Experience podcast (google.com)

When Life Gives You Parkinson’s podcast by Larry Gifford

Here’s another podcast that takes a light-hearted, informative look at life with PD.

When Life Gives You Parkinson’s (google.com)

FREE Online Activity Classes are coming from APDA NW

The American Parkinson’s Disease Association (APDA) Northwest Chapter is organizing some FREE online exercise classes to help us keep moving. Peter Lynch will be hosting Yoga for PD on Tuesdays and Thursdays. PD newcomer Chris Diagre will host his own fun and unique style of dance classes on a weekend. There’s also a Rock Steady Boxing class on Saturday mornings at 9:30 a.m. PST. Watch for emails from Jen GIllick @ APDA or use the link below and navigate to the events calendar.

American Parkinson’s Disease Association Northwest Chapter

Washington State Parkinson Disease Registry

The purpose of the Washington State Parkinson Disease Registry is to make Parkinson’s disease (PD) research happen faster by connecting people with PD to the research community.

http://depts.washington.edu/wpdr/

Oregon Health and Sciences University (OHSU) Deep Brain Stimulation Guide

https://www.ohsu.edu/sites/default/files/2019-09/OHSU%20DBS%20Deep%20Brain%20Stimulation%20for%20Parkinsons%20Disease%20Sept%202019%20vFNL%20web.pdf

Northwest Parkinson’s Foundation

Northwest Parkinson’s Foundation transforms the way people live with Parkinson’s. They provide free one-on-one navigation services in all areas of life impacted by Parkinson’s–such as employment, benefits, and family relationships–through their Social Work team. NWPF facilitates free educational events tailored for and by Northwest communities. NWPF is the local, independent and community-driven non-profit organization serving WA, ID, AK, and MT.

https://nwpf.org/

Davis Phinney Foundation

Newly diagnosed? Get the free Every Victory Counts manual (download or hard copy). You can also connect with an ambassador, participate in events and access resources.

Davis Phinney Foundation

(Also see guest blog posts from one of our own on arriving at a diagnosis and working full-time with YOPD.)

Facebook Groups

Like Facebook? Want to connect with other PWPs there? Facebook groups are plentiful. From Facebook, go to Groups and Search Groups. Some we know about: SEAYOPD Group, Parkinson’s Road Fitness Fun, Young Onset Parkinsons, Very Young Parkinson’s Disease, STRONGHER Women Fighting Parkinson’s, YOPD Women Unite and Parkinson’s Disease Humor Group.

Flying Solo

A new support group for single PWPs. This is not a dating group. The facilitator is a licensed mental health counselor. This a group for people to support each other through camaraderie.

If you are interested, contact leanne@seattleelderconnections.com.

Pass to Pass

Pass to Pass is an eastern-Washington based non-profit that organizes llama-assisted hikes and camping trips for people with Parkinson’s along the Pacific Crest Trail and other locations.